FoxNews ran a spot on Saturday about a 61-lb Columbian baby. The doctor on the segment suspected that the child had Prader-Willi syndrome.  I was impressed that the doctor even knew about PWS, and even mentioned that Growth Hormone Therapy was an effective treatment. 

In just one week, a number of folks from both FPWR and PWSA will gather in Washington DC for a weekend packed with learning, sharing, fundraising, and advocacy. 

On Sun September 7, the Foundation for Prader-Willi Research will host it's annual conference in Crystal City, VA - just over the river from our Nation's Capitol. 

On Monday, the 3rd Annual Prader-Will Research Golf tournament will be held to raise money for research on Prader-Willi syndrome. 

We families and parents of children of PWS, well, we band together quite often.  Here is one circumstance where a mother in Virginia (of a very cute kid I might add) has applied for a grant through American Express.  This grant only goes to select organizations who will split a total of $2.5m dollars between them. 

With many thanks to the Hurdle family, their 5th Annual Golf Fore Prader-Willi syndrome was a huge success.  Karla did an amazing job of making everything fit, and the Colorado Rockies and their staff were spectacular.   In addition, Clint brought the crowd to tears as he talked about the challenges and un-expected blessings of raising a child with Prader-Wili syndrome.

Perhaps this is the year that we finally see a Triple Crown Winner?  The weather was beautiful today here in Colorado, but that didn't stop me from sneaking in around 4pm to watch the Preakness.

The agenda is set for the 134th Kentucky Derby Fundraiser. The program guides are at the printer as we speak, and the final preparations are definitely underway.  We are excited. Are you? 

Don't miss our first Kentucky Derby Hat contest this year!  Sorry guys, its ladies only!  But, don't worry, next year we are considering a men's fashion contest as well (perhaps something around the seersucker theme?)

These events would be fun, but they would not be a success unless we were able to raise money to support our program services.  We have a lot of things going on in 2008, and we are eager to get started.  With that said, the 2008 Kentucky Derby fundraiser is off to a GREAT START!

War Pass Injured, Out of Kentucky Derby
Updated: April 19, 2008
From Churchill Downs press release

Robert LaPenta's War Pass, the champion 2-year-old of 2007 and winner of the $2 million Bessemer Trust Breeders' Cup Juvenile (gr. I) at Monmouth Park, has suffered a leg injury that has knocked the colt out of the $2 million guaranteed Kentucky Derby Presented by Yum! Brands (gr. I).

The trainers are scrambling to get their horses ready, Churchill Downs is getting ready, and SO ARE WE!  Thanks to Lori and Kari, we are methodically marking off the list of to-do items that need to get done before the Derby.

I have a few more on my list that Lori keeps reminding me about, including the Wine, a few more auction items, and the T-Shirts.  Geez, its a full time job!

Anyways, MANY MANY thanks to our sponsors and those who plan or have supported us this year!

Clint and Karla Hurdle