In just one week, a number of folks from both FPWR and PWSA will gather in Washington DC for a weekend packed with learning, sharing, fundraising, and advocacy.
On Sun September 7, the Foundation for Prader-Willi Research will host it's annual conference in Crystal City, VA - just over the river from our Nation's Capitol.
On Monday, the 3rd Annual Prader-Will Research Golf tournament will be held to raise money for research on Prader-Willi syndrome.
On Tuesday, all parties will gather to "Hike the Hill" and advocate for more support and awareness for Prader-Willi syndrome with our legislators. Hopefully they are alive and kicking after two weeks of conventions and parties. Cross your fingers!
Hope to see you there! You can get more details on this event at the Foundation for Prader-Willi Research Website.
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